Resources
Here’s a short list of organisations and links providing info about post-infectious diseases and prevention.
Be sure to follow us on Instagram, where we share our knowledge and perspective on the neglected chronic illness experience as people who take precautions to protect ourselves and those around us.
Disclaimer: Berlin Buyers Club does not endorse any organisations, nor do we have any formal affiliations. This list is subject to change.
ME/CFS
MCAS
Dysautonomia & POTS
EDS
Lyme disease
Psychiatric drug withdrawal
Long Covid & PAIS
- BMG-Initiative Long COVID
- Charité
- European Commission
- The Lancet
- Long COVID Deutschland
- Long Covid Kids
- Long COVID Physio
- Maja Strasser’s treatment plan (PDF, German)
- MedUni Wien off-label medication list (PDF, German)
- National Health Service
- Nature
- Patient-Led Research Collaborative
- The Sick Times
- World Health Organization
- Yale’s Iwasaki Lab
Infection prevention
Berlin
Articles of note
- Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed (external link)
- Im Dunkeln vergessen (external link)
- Germany’s “Reha” clinics aren’t set up for Long COVID. And patients are reporting harm. (external link)
- Glaubst du an Long Covid? (external link)
- Sie waren Draußenkinder (external link)
- Long Covid: Risikogruppe Frau (external link)
- Clearing the Air (external link)
- ‘You don’t want to get better’: the outdated treatment of ME/CFS patients is a national scandal (external link)
- Reporting on Long Covid Taught Me to Be a Better Journalist (external link)
- ‘Long Covid triggered our MCAS, but doctors didn’t believe us’ (external link)
- People with Long COVID Have Distinct Hormonal and Immune Differences From Those Without This Condition (external link)
- Fatigue Can Shatter a Person (external link)
- Long COVID Has Forced a Reckoning for One of Medicine’s Most Neglected Diseases (external link)
- »Man kann sein Leben verlieren, ohne zu sterben« (external link)
- Kolja will nicht sterben, er will sein Leben zurück (external link)
- COVID-19 Long-Haulers Are Fighting for Their Future (external link)
- The 60-Year-Old Scientific Screwup That Helped Covid Kill (external link)
- What If You Never Get Better From Covid-19? (external link)
- Eine Kindheit verblasst (external link)
- The Challenge of Going Off Psychiatric Drugs (external link)
- Many People Taking Antidepressants Discover They Cannot Quit (external link)
- Bad science misled millions with chronic fatigue syndrome. Here’s how we fought back (external link)
- What’s Wrong with Me? (external link)
- A Sudden Illness (external link)